Posts Tagged ‘family’
Real Moms, Real Stories: Advocacy That Inspires
Join us, for an inspiring and down-to-earth conversation with six incredible moms who are walking the path of advocacy for their disabled children. They’ll share personal stories—real, raw, and powerful—about…
閱讀更多DEE-P Chat: Relationships 101 Follow-up
Join us, for a follow up with your partner for a “DEE-P Chat” with other couples to feel seen and heard. Amanda and Anne will be in attendance to answer…
閱讀更多管理複雜孩子的旅程
在這次對話中，您將遇到 Blyth Lord——卡梅倫的母親，她患有遺傳性疾病並在 2 歲時去世。
閱讀更多防止護理人員倦怠：增強復原力研討會
這個關於建立復原力和防止護理人員倦怠的研討會是由一對了不起的母女二人組舉辦的——STXBP1 媽媽和社會工作者，Amelia Seraphia Derr 和她的媽媽，…
閱讀更多Growth Attenuation Therapy – Everything you want and need to know
Join us to learn more about growth attenuation therapy (GAT) – an intervention to bring on early puberty in order to reduce the ultimate growth of a child. Since 2006,…
閱讀更多兒科臨終關懷支持與護理
This is a recording of the webinar “Complex Continual Care for those with living DEEs and their families,” which was held on November 30th, 2021. Pediatric hospice support is not…
閱讀更多為 DEE 家庭拯救我們的遠距醫療
This is a recording of the webinar “Saving Our Telehealth,” which was held on July 20th, 2020. For families who have trouble leaving the house with their medically fragile children,…
閱讀更多Promoting Healthy Relationships between Those with Severe Epilepsy and Their Siblings
Have you struggled with how to manage the relationships between your medically complex children and their more typically developing siblings? Are you a sibling to someone with severe epilepsy and…
閱讀更多Strategies for Learning at Home with your DEE Child and Engaging the Whole Family
This is a recording of the DEE-P Connections webinar from May 13, 2020 “Strategies for Fun and Learning at Home for Kids with DEEs and the Whole Family” which explored…
閱讀更多COVID -19 Through the Lens of Grief
DEE-P Connections planned this webinar in coordination with The Wendt Center for Loss and Healing. This is a recording of the webinar originally broadcasted on April 14, 2020. The webinar…
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