Publicacións coa etiqueta 'family'
Real Moms, Real Stories: Advocacy That Inspires
Join us, for an inspiring and down-to-earth conversation with six incredible moms who are walking the path of advocacy for their disabled children. They’ll share personal stories—real, raw, and powerful—about…
Le máisDEE-P Chat: Relationships 101 Follow-up
Join us, for a follow up with your partner for a “DEE-P Chat” with other couples to feel seen and heard. Amanda and Anne will be in attendance to answer…
Le máisXestionar a viaxe co seu fillo complexo
Nesta conversación, coñecerá a Blyth Lord, a nai de Cameron que tiña unha enfermidade xenética e faleceu aos 2 anos. É a fundadora de...
Le máisPrevención do burnout do coidador: un obradoiro sobre a construción da resiliencia
Este obradoiro sobre o fomento da resiliencia e a prevención do burnout do coidador levouse a cabo cun incrible dúo nai-filla: a nai STXBP1 e a traballadora social, Amelia Seraphia Derr e a súa nai,...
Le máisTerapia de atenuación do crecemento: todo o que queres e necesitas saber
Únete a nós para aprender máis sobre a terapia de atenuación do crecemento (GAT), unha intervención para provocar a puberdade temperá e reducir o crecemento final dun neno. Dende 2006,…
Le máisPediatric Hospice Support & Care
This is a recording of the webinar “Complex Continual Care for those with living DEEs and their families,” which was held on November 30th, 2021. Pediatric hospice support is not…
Le máisSaving Our Telehealth for DEE Families
This is a recording of the webinar “Saving Our Telehealth,” which was held on July 20th, 2020. For families who have trouble leaving the house with their medically fragile children,…
Le máisPromoting Healthy Relationships between Those with Severe Epilepsy and Their Siblings
Have you struggled with how to manage the relationships between your medically complex children and their more typically developing siblings? Are you a sibling to someone with severe epilepsy and…
Le máisStrategies for Learning at Home with your DEE Child and Engaging the Whole Family
This is a recording of the DEE-P Connections webinar from May 13, 2020 “Strategies for Fun and Learning at Home for Kids with DEEs and the Whole Family” which explored…
Le máisCOVID -19 Through the Lens of Grief
DEE-P Connections planned this webinar in coordination with The Wendt Center for Loss and Healing. This is a recording of the webinar originally broadcasted on April 14, 2020. The webinar…
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