family Archives

Real Moms, Real Stories: Advocacy That Inspires

Join us, for an inspiring and down-to-earth conversation with six incredible moms who are walking the path of advocacy for their disabled children. They’ll share personal stories—real, raw, and powerful—about…

DEE-P Chat: Relationships 101 Follow-up

Join us, for a follow up with your partner for a “DEE-P Chat” with other couples to feel seen and heard. Amanda and Anne will be in attendance to answer…

Den Weg mit Ihrem komplexen Kind meistern

In diesem Gespräch lernen Sie Blyth Lord kennen – die Mutter von Cameron, der eine genetische Störung hatte und im Alter von 2 Jahren verstarb. Sie ist die Gründerin von …

Burnout bei Pflegekräften vorbeugen: Ein Workshop zum Thema Resilienz aufbauen

Dieser Workshop zum Thema „Stärken der Resilienz und Vorbeugung von Burnout bei Pflegekräften“ wurde mit einem wunderbaren Mutter-Tochter-Duo abgehalten – der STXBP1-Mutter und Sozialarbeiterin Amelia Seraphia Derr und ihrer Mutter …

Wachstumshemmungstherapie – Alles, was Sie wissen möchten und müssen

Erfahren Sie mehr über die Wachstumshemmungstherapie (GAT) – eine Intervention, die die Pubertät früher herbeiführt, um das endgültige Wachstum eines Kindes zu verlangsamen. Seit 2006…

Pediatric Hospice Support & Care

This is a recording of the webinar “Complex Continual Care for those with living DEEs and their families,” which was held on November 30th, 2021. Pediatric hospice support is not…

Saving Our Telehealth for DEE Families

This is a recording of the webinar “Saving Our Telehealth,” which was held on July 20th, 2020. For families who have trouble leaving the house with their medically fragile children,…

Promoting Healthy Relationships between Those with Severe Epilepsy and Their Siblings

Have you struggled with how to manage the relationships between your medically complex children and their more typically developing siblings? Are you a sibling to someone with severe epilepsy and…

Strategies for Learning at Home with your DEE Child and Engaging the Whole Family

This is a recording of the DEE-P Connections webinar from May 13, 2020 “Strategies for Fun and Learning at Home for Kids with DEEs and the Whole Family” which explored…

COVID -19 Through the Lens of Grief

DEE-P Connections planned this webinar in coordination with The Wendt Center for Loss and Healing. This is a recording of the webinar originally broadcasted on April 14, 2020. The webinar…