Mesajên bi tagê 'family'
Real Moms, Real Stories: Advocacy That Inspires
Join us, for an inspiring and down-to-earth conversation with six incredible moms who are walking the path of advocacy for their disabled children. They’ll share personal stories—real, raw, and powerful—about…
Read MoreDEE-P Chat: Relationships 101 Follow-up
Join us, for a follow up with your partner for a “DEE-P Chat” with other couples to feel seen and heard. Amanda and Anne will be in attendance to answer…
Read MoreRêvebirina Rêwîtiyê bi Zaroka xweya Kompleks re
Di vê danûstendinê de, hûn ê Blyth Lord - dayika Cameron ku nexweşiyek genetîkî hebû û di 2 saliya xwe de koça dawî kir. Ew Damezrînerê…
Read MorePêşîlêgirtina şewitandina lênêrînê: Atolyeyek li ser avakirina berxwedanê
Ev atolyeya li ser Avakirina Berxwedêriyê û Pêşîlêgirtina Şewitandina Lênêrînê bi duoyek keça dayikek ecêb - dayika STXBP1 û Karkerê Civakî, Amelia Seraphia Derr û diya wê, hate girtin…
Read MoreTedawiya Kêmbûna Mezinbûnê - Her tiştê ku hûn dixwazin û hewce ne ku zanibin
Tevlî me bibin ku di derbarê terapiya kêmbûna mezinbûnê (GAT) de bêtir fêr bibin - destwerdanek ku zû zû zû balixbûnê bîne da ku mezinbûna dawî ya zarokek kêm bike. Ji sala 2006ê ve,…
Read MorePiştgirî û Lênêrînê ya Hospice Zarokan
This is a recording of the webinar “Complex Continual Care for those with living DEEs and their families,” which was held on November 30th, 2021. Pediatric hospice support is not…
Read MoreJi bo Malbatên DEE Teletendurustiya me xilas dike
This is a recording of the webinar “Saving Our Telehealth,” which was held on July 20th, 2020. For families who have trouble leaving the house with their medically fragile children,…
Read MorePromoting Healthy Relationships between Those with Severe Epilepsy and Their Siblings
Have you struggled with how to manage the relationships between your medically complex children and their more typically developing siblings? Are you a sibling to someone with severe epilepsy and…
Read MoreStrategies for Learning at Home with your DEE Child and Engaging the Whole Family
This is a recording of the DEE-P Connections webinar from May 13, 2020 “Strategies for Fun and Learning at Home for Kids with DEEs and the Whole Family” which explored…
Read MoreCOVID -19 Through the Lens of Grief
DEE-P Connections planned this webinar in coordination with The Wendt Center for Loss and Healing. This is a recording of the webinar originally broadcasted on April 14, 2020. The webinar…
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