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Growing Together: Navigating the Life Stage Checklist for Families
Aurdrey Vernick with Pediatric Epilepsy Surgery Alliance, walked participants through the Transition to Adulthood/Life Stage Checklist step-by-step, breaking down key milestones and actionable steps across critical life stages. From early intervention…
Waca liyaneWhy do I love DEE-P Connections?
Why do I love DEE-P Connections? I had never heard of a Developmental and Epileptic Encephalopathy (DEE) until we were told our daughter had one. She was just three months…
Waca liyaneCortical Visual Impairment (CVI) lan Developmental and Epileptic Encephalopathies (DEEs)
In this webinar, you will learn more about what Cortical Visual Impairment (CVI) is, what things looks like to someone with CVI and how to manage care and adapt for…
Waca liyaneOra didiagnosis
Diskusi DEE-P iki direkam ing 13 September 2023. Sajrone Diskusi DEE-P iki, kita njelajah pengalaman duwe anak sing kelainan epilepsi langka sing ora didiagnosis. Kita diskusi macem-macem…
Waca liyanePerawatan Langka & Tantangan karo Self-Care - Diskusi DEE-P
Webinar iki direkam tanggal 30 Juni 2023. Gabung karo diskusi iki karo pengasuh langka babagan tantangan perawatan diri. Wong seneng ngandhani yen kita kudu…
Waca liyaneProgram kanggo Mbantu Ngrawat Anak Komplek Kita - Rawat Inap lan Rawat Jalan
Webinar iki direkam ing tanggal 7 Juni 2023. Program Perawatan Komplek minangka perawatan utama kanggo bocah-bocah kanthi kondisi medis kronis sing kompleks, asring kanthi macem-macem diagnosis lan gumantung marang teknologi (yaiku…
Waca liyaneMasalah GI lan Gangguan Neurodevelopmental
Webinar iki direkam tanggal 13 Februari 2023. Ing webinar iki, krungu bab masalah GI kayata refluks, tabung pakan, constipation, lan liya-liyane! Pembicara: Russ Zwiener, dokter GI pediatrik lan KdVS…
Waca liyaneMbukak Misteri Ataxia, Hipertonisitas, Athetosis lan Nada Campuran
“Unraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone” is the second in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
Waca liyaneAdaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays
“Adaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays” is the third in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our…
Waca liyaneRAKAMAN - Langkah-langkah Kasil Maju kanggo Populasi sing Dipengaruhi Parah
Mbangun Konsorsium kanggo Maju Langkah-langkah Hasil kanggo Populasi sing Terdampak Parah Iki minangka rekaman saka lokakarya kaping pindho, sing dianakake tanggal 11 November 2021, fokus ing Mbangun Konsorsium kanggo Maju…
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