This is the recording of the “SUDEP – Family Perspectives” webinar which was recorded on January 27th, 2021.

To wrap up this series, we heard from families directly.

The session was moderated by Sally Schaeffer – mother to Lydia—who had a rare form of epilepsy and passed away from SUDEP—and Senior Director of the SUDEP Institute at the Fundação de Epilepsia.

Our caregiver panelists, all powerhouse advocates, were:

Danielle O’Ryan, who lost her brother, Josh, to SUDEP.

Edana Perry, who lost her daughter, Kayla, to SUDEP.

Teresa Elder, whose adult son, Tommy, lives with an aggressive form of rare epilepsy.

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