Вебинар: Ни өчен ми тукымасы бүләк итү мөһим
Июнь 24, 2022 @ 10:00 am – 11.00
The loss of any loved one with a rare epilepsy is unimaginable. We all wish there were more we could do to help end the suffering that comes with a rare epilepsy diagnosis. In this webinar, we want to tell you about one incredibly important way families can make a huge impact – brain tissue donation.
We will hear from families who have been through this, a world renowned researcher utilizing these precious donations to make breakthroughs and the director of the Гарвард ми тукымасы Боларның ничек эшләве турында ресурс үзәге. Бу вебинар Hope4Harper партнерларыбыз белән берлектә үткәрелә.
Our guests will be:
Пенни Ховард – mom to Harper, who had CDKL5 Deficiency Disorder (CDD) and bravely gave her brain to help study how to help those with CDD who come after her. Penny is also the Founder and Director of the Hope 4 Harper, a non-profit working to provide hope to those living with CDD and other related diseases.
Angie Weaver – Angie is Director of a nonprofit in Northern Minnesota, a passionate advocate and Warrior Mom to Amelia, who had SCN2A 12 яшендә үлеп китте. Энджи һәм аның гаиләсе Амелиянең органнарын һәм тукымаларын бүләк итү турында кыю карар кабул иттеләр, шуңа күрә хәзер дә Амелия дәвалау өчен көрәшә.
Фрэнсис Элизабет Йенсен, MD, FACP – among many other things, is the Chair of the Department of Neurology at the Perelman School of Medicine, University of Pennsylvania and Co-Director of the Penn Medicine Translational Neuroscience Center. Dr. Jensen has researched the brain extensively and uses donated brain tissue to make breakthroughs in our understanding of disease and potential pathways to better treatments.
Сабина Берретта, М.Д.. – Психиатрия доценты, Гарвард медицина училищесы һәм Гарвард ми тукымасы ресурс үзәге директоры / NIH NeuroBioBank, ул NIH ми бүләк итү үзәге белән идарә итми, ә күп еллар миен бүләк ителгән тукымалар белән өйрәнә.