Webinar: Why Brain Tissue Donation Matters
6 月 24, 2022 @ 10:00 上午 – 11:00 上午
The loss of any loved one with a rare epilepsy is unimaginable. We all wish there were more we could do to help end the suffering that comes with a rare epilepsy diagnosis. In this webinar, we want to tell you about one incredibly important way families can make a huge impact – brain tissue donation.
We will hear from families who have been through this, a world renowned researcher utilizing these precious donations to make breakthroughs and the director of the 哈佛腦組織 有關這一切如何運作的資源中心。這場網路研討會是與我們的合作夥伴 Hope4Harper 共同舉辦的。
Our guests will be:
彭妮·霍華德 – mom to Harper, who had CDKL5 Deficiency Disorder (CDD) and bravely gave her brain to help study how to help those with CDD who come after her. Penny is also the Founder and Director of the Hope 4 Harper, a non-profit working to provide hope to those living with CDD and other related diseases.
Angie Weaver – Angie is Director of a nonprofit in Northern Minnesota, a passionate advocate and Warrior Mom to Amelia, who had SCN2A 12 歲時去世。
弗朗西斯·伊麗莎白·詹森（Frances Elizabeth Jensen），醫學博士，FACP – among many other things, is the Chair of the Department of Neurology at the Perelman School of Medicine, University of Pennsylvania and Co-Director of the Penn Medicine Translational Neuroscience Center. Dr. Jensen has researched the brain extensively and uses donated brain tissue to make breakthroughs in our understanding of disease and potential pathways to better treatments.
薩賓娜·貝雷塔，醫學博士. – 哈佛醫學院精神病學副教授 哈佛腦組織資源中心/NIH NeuroBioBank 主任，他不僅經營 NIH 大腦捐贈中心，而且多年來一直用捐贈的組織研究大腦。