Webinar: Why Brain Tissue Donation Matters
јуни 24, 2022 @ 10:00 am – 11:00 am
The loss of any loved one with a rare epilepsy is unimaginable. We all wish there were more we could do to help end the suffering that comes with a rare epilepsy diagnosis. In this webinar, we want to tell you about one incredibly important way families can make a huge impact – brain tissue donation.
We will hear from families who have been through this, a world renowned researcher utilizing these precious donations to make breakthroughs and the director of the Харвардско мозочно ткиво Ресурсен центар за тоа како функционира сето ова. Овој вебинар се одржува заедно со нашите партнери во Hope4Harper.
Our guests will be:
Пени Хауард – mom to Harper, who had CDKL5 Deficiency Disorder (CDD) and bravely gave her brain to help study how to help those with CDD who come after her. Penny is also the Founder and Director of the Hope 4 Harper, a non-profit working to provide hope to those living with CDD and other related diseases.
Angie Weaver – Angie is Director of a nonprofit in Northern Minnesota, a passionate advocate and Warrior Mom to Amelia, who had SCN2A и почина на 12-годишна возраст. Енџи и нејзиното семејство донесоа храбра одлука да ги донираат органите и ткивата на Амелија, па дури и сега Амелија се бори за лек.
Френсис Елизабет Јенсен, MD, FACP – among many other things, is the Chair of the Department of Neurology at the Perelman School of Medicine, University of Pennsylvania and Co-Director of the Penn Medicine Translational Neuroscience Center. Dr. Jensen has researched the brain extensively and uses donated brain tissue to make breakthroughs in our understanding of disease and potential pathways to better treatments.
д-р Сабина Берета. – Вонреден професор по психијатрија, Медицинскиот факултет Харвард и директор на Харвардскиот ресурсен центар за мозочно ткиво/NIH NeuroBioBank кој не само што раководи со центар за донација на мозок на НИХ, туку има поминато многу години проучувајќи го мозокот со донирано ткиво.