This DEE-P Discussion was recorded on September 13, 2023.

During this DEE-P Discussion, we explore the experience of having a child with an undiagnosed rare epilepsy disorder. We discuss different ways of navigating the experience, the challenges, and the benefits of connection and community.

Our panel includes Moms of children with undiagnosed rare epilepsy disorders Kelsey Mccoy, Jennifer Spina, Mariah Gillaspie and is moderated by Anne Thompson Heller – a Rare Mom and DEE-P Connections Board Member.

To find more resources tailored especially to rare epilepsy/DEE families, visit our Resource Center.

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