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Welcome,
DEE-P Families!

Find Your Path To Answers Here.

Leitaðu í auðlindamiðstöðinni

Recent Webinars & Videos

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IEP hrunnámskeið

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Beinheilsa fyrir DEEs

Caregiver DEE-P Discussion - Help (1)

Sjaldgæf umönnun og áskoranir með sjálfumönnun – DEE-P umræða

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Forrit til að hjálpa til við að sjá um flókin börn okkar - legudeildir og göngudeildir

DEE-P connections 2025 sponsors include Praxis, Neurocrine, and Longboard.

A Note About Site Information

Fully populating each topic with carefully curated resources is a work in progress. The most complete resource pages are in the topic areas of our completed webinars, where we have brought leading national experts to lay out the most currently available relevant information with specific focus on the rare epilepsies. Each resource page will have a consistent structure organizing information on (1) webinars, (2), slides and webinar handouts, (3) tools and guidance, and (4) research studies. The drop down menu shows all topics for which we plan to develop a resource page, but ones for which no content has been developed will be faded and not have an active link.
 
We welcome your input and suggestions. Are there topics of interest to you and your community which are not reflected in our itemized topics? Would you or your community like to recommend relevant resources on any topics for inclusion on this site which you believe can be of value for families with a different DEE/ diagnosis? Please write us at gabi@wishesforelliott.com with your feedback, input or recommendations. 
 

 

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Persónuverndaryfirlýsing

Við gerum okkur grein fyrir því að friðhelgi þína er mikilvæg. Persónuverndaryfirlýsing okkar lýsir tegundum persónuupplýsinga sem við fáum og söfnum þegar þú notar þessa vefsíðu, auk nokkurra aðgerða sem við tökum til að vernda upplýsingar. Vinsamlegast lestu meira hér.