Complex Care programs are primary care for children with complex chronic medical conditions, often with multiple diagnoses and dependent on technology (i.e. ventilator), tube fed, etc. This is a medical home for your child with clinicians who understand and work to help manage the complexity of your child's care. Additionally, complex care programs - both…
Join us for a discussion with rare caregivers about the challenges of self-care. People are fond of telling us we need to care for ourselves but that can often seem like a luxury when you are caring for a medically complex child. We will talk about ways that we both struggle with and have learned…