Family
Ngatur Perjalanan karo Anak Komplek
Ing obrolan iki, sampeyan bakal ketemu Blyth Lord - ibu kanggo Cameron sing duwe kelainan genetis lan tilar donya nalika umur 2. Dheweke dadi Pendiri ...
Waca liyaneNyegah Caregiver Burnout: A Workshop on Building Resilience
Lokakarya iki babagan Bangunan Ketahanan lan Nyegah Kebakaran Pengasuh dianakake karo duo putri ibu sing luar biasa - ibu STXBP1 lan Pekerja Sosial, Amelia Seraphia Derr lan ibune,…
Waca liyaneOra didiagnosis
Diskusi DEE-P iki direkam ing 13 September 2023. Sajrone Diskusi DEE-P iki, kita njelajah pengalaman duwe anak sing kelainan epilepsi langka sing ora didiagnosis. Kita diskusi macem-macem…
Waca liyanePerawatan Langka & Tantangan karo Self-Care - Diskusi DEE-P
Webinar iki direkam tanggal 30 Juni 2023. Gabung karo diskusi iki karo pengasuh langka babagan tantangan perawatan diri. Wong seneng ngandhani yen kita kudu…
Waca liyanePilihan Teknologi Tinggi kanggo Komunikasi Alternatif lan Akses ing Omah
“High-tech Options for Alternative Communication and Access within the Home” is the fifth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
Waca liyaneSistem Komunikasi Low-Tech/No-Tech kanggo Bocah-bocah karo Kebutuhan Komunikasi Komplek
“Low-Tech/No-Tech Communication Systems for Children with Complex Communication Needs” is the fourth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends at…
Waca liyaneMbukak Misteri Ataxia, Hipertonisitas, Athetosis lan Nada Campuran
“Unraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone” is the second in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
Waca liyaneAdaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays
“Adaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays” is the third in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our…
Waca liyaneAn Overview of Hypotonia and How it Impacts Overall Functioning and Development
“An Overview of Hypotonia and How it Impacts overall Functioning and Development” is the first in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with…
Waca liyaneDhukungan & Perawatan Hospice Anak
This is a recording of the webinar “Complex Continual Care for those with living DEEs and their families,” which was held on November 30th, 2021. Pediatric hospice support is not…
Waca liyane