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Resources on medical topics are organized around the full range of medical issues associated with rare epilepsies and their wide ranging comorbidities. Most topics are structured around primary medical specialties such as neurology, pulmonology or orthopedics. However, we provide a word search tool which allows users to access resources by searching around key symptoms such as seizures, respiratory failure or DMEs.

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Medical Categories

Autism And Related Disorders

Autonomic Disorders

Brain Surgery

Cardiac Conditions - Coming Soon

Complex Care Programs - Coming Soon


CVI/Vision Issues


Endocrine Issues - Coming Soon

Genetic Testing

GI Issues - Coming Soon

Ketogenic Diet

Orthopedic Issues - Coming Soon

Pulmonary/Respiratory - Coming Soon

Quality Improvement Epilepsy Care

Seizures - Cannabinoids/CBD

Seizures - Infantile Spasms

Seizures - Polypharmacology - Coming Soon

Seizures - Rescue Medication

Seizures - Tracking & Monitoring

Seizures - Types - Coming Soon

Sleep Issues

Urology - Coming Soon

VNS, DBS, RNS – Brain Stimulators

Most Recent Medical Entries

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Most Recent Webinars & Videos


Rescue Medications for DEEs Series – Part 2


COVID-19 vaccines and the DEE population


Rescue Medications for DEEs Series – Part 1


Improving the Quality of Rare Childhood Epilepsy Care

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