Please note that the most-up-to-date information on COVID-19 (Coronavirus) may have changed since this webinar took place.
Please visit www.cdc.gov/coronavirus for the latest information.
This webinar was moderated by Gabrielle Conecker of Wishes for Elliott and the panelists were:
Colleen Gagnon RN, BSN – Clinical Coordinator and Rare Mom
Chris Ryan, MSW, LCSW – Clinical Social Worker
Cheryl Cahill, RN, MSN, CNRN – Epilepsy Surgical Coordinator and Rare Mom
Family Voices of DEE caregivers included:
Karen Utley, Mom to Samantha and President, International Foundation for CDKL5 Research &
Yssa DeWoody PhD, Mom to Marie and President, Ring14 USA
This is a recording of the DEE-P Connections webinar broadcast on April 23, 2020
This webinar—planned in coordination with The Epilepsy Foundation of America—shared front line experiences and updates on COVID-19 in children with severe epilepsy from three Boston Children’s Hospital Division of Epilepsy & Clinical Neurophysiology staff and two DEE parent advocates.
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