Lêkolîn
Understanding ASOs & Informed Consent
Navigating emerging treatment options can feel overwhelming, especially when families are asked to make decisions about experimental or individualized therapies. In this educational webinar, DEEP and KCNT1 Epilepsy explore the…
Read MoreZêdekirina gihîştina ceribandinên klînîkî û dermankirinên nû li seranserê DEEs
Ev tomarek webinar e ku di 29ê Avrêl, 2024-an de hatî çêkirin. Ev axaftinek li ser modelek ceribandina klînîkî ya sozdar e ji bo dermankirinên nû yên epîlepsiyê ku gihîştina bi lez dike…
Read MoreÇima EEG girîng e û ew çi dikarin eşkere bikin
Ev qeyda webinara DEE-P e ku di 12ê Cotmeha, 2023-an de hatî tomar kirin. Ma we qet meraq kir ku hîn bêtir heye ku em ji EEG hîn bibin…
Read MoreNenaskirî
Ev Gotûbêja DEE-P di 13-ê Îlona 2023-an de hate tomar kirin. Di vê Nîqaşa DEE-P de, em ezmûna hebûna zarokek bi nexweşiyek epîlepsiya nadir a nenaskirî vedikolin. Em cûda nîqaş dikin…
Read MoreTÊKIRIN - Tedbîrên Encama Pêşveçûn Ji bo Nifûsên Zehf Bibandor
Avakirina Konsorsiyûmek Ji bo Pêşxistina Tedbîrên Encamê Ji bo Nifûsên Zehmetbar Ev tomarkirina atolyeya duyemîn e, ku di 11-ê Mijdara 2021-an de pêk hat, li ser Avakirina Konsorsiyûmek ji bo Pêşveçûnê…
Read MoreQEYDKIRINA - NIRXANDINA REWŞ Û DERBETAN
NIRXANDINA REWŞ Û DERBET JI BO PÊŞVE DIKE TÎDÎNÊN ENCAME JI BO NIFELÊN HERÎ ZIRDAR KIRIN Ev qeyda roja yekem a komxebatê ye, ku di 4-ê Mijdara 2021-an de hate lidarxistin, û…
Read MoreHÛN Dikarin çi bikin ji bo saxkirina epîlepsiyê?
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
Read MoreHow Effective is Your Epilepsy Care?
We all want our kids to get the best care possible. But how effective has your child’s epilepsy care been? What can we do to improve outcomes? This conversation—with three…
Read MoreThe ABCs of Clinical Trials Part 2 – What Every Rare Disease Family Should Know
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
Read MoreThe ABC’s of Clinical Trials Part 1 – The Basics
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
Read More