Forskning
Understanding ASOs & Informed Consent
Navigating emerging treatment options can feel overwhelming, especially when families are asked to make decisions about experimental or individualized therapies. In this educational webinar, DEEP and KCNT1 Epilepsy explore the…
Les merØke tilgangen til kliniske studier og nye behandlinger på tvers av DEE-ene
Dette er et opptak av webinaret holdt 29. april 2024. Dette er en samtale om en lovende klinisk utprøvingsmodell for nye epilepsibehandlinger som akselererer tilgangen til...
Les merHvorfor EEG er viktig og hva de kan avsløre
Dette er innspillingen av DEE-P webinaret som ble tatt opp 12. oktober 2023. Har du noen gang lurt på om det var mer vi kunne lære av EEG...
Les merUdiagnostisert
Denne DEE-P-diskusjonen ble tatt opp 13. september 2023. Under denne DEE-P-diskusjonen utforsker vi opplevelsen av å ha et barn med en udiagnostisert sjelden epilepsilidelse. Vi diskuterer forskjellige…
Les merOPPTAK – Forhåndstiltak for sterkt berørte befolkninger
Building a Consortium to Advance Outcome Measures for Severely Affected Populations This is a recording of the second workshop, held November 11th 2021, focused on Building a Consortium to Advance…
Les merOPPTAK – VURDERE STATUS OG MULIGHETER
ASSESSING STATUS AND OPPORTUNITIES FOR DEVELOPING OUTCOME MEASURES FOR THE MOST SEVERELY AFFECTED POPULATIONS This is a recording of day one of the workshop, held November 4th 2021, and was…
Les merHva kan DU gjøre for å kurere epilepsiene?
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
Les merHvor effektiv er epilepsibehandlingen din?
We all want our kids to get the best care possible. But how effective has your child’s epilepsy care been? What can we do to improve outcomes? This conversation—with three…
Les merABCs of Clinical Trials del 2 - Hva enhver familie med sjeldne sykdommer bør vite
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
Les merABC's of Clinical Trials del 1 – Grunnleggende
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
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