Riset
Understanding ASOs & Informed Consent
Navigating emerging treatment options can feel overwhelming, especially when families are asked to make decisions about experimental or individualized therapies. In this educational webinar, DEEP and KCNT1 Epilepsy explore the…
Waca liyaneNambah Akses menyang Uji Coba Klinis lan Perawatan Anyar ing DEE
Iki minangka rekaman webinar sing dianakake tanggal 29 April 2024. Iki minangka obrolan babagan model uji klinis sing janjeni kanggo perawatan epilepsi anyar sing nyepetake akses menyang…
Waca liyaneNapa EEG Penting lan Apa Sing Bisa Dicethakaké
Iki minangka rekaman webinar DEE-P sing direkam ing 12 Oktober 2023. Apa sampeyan tau mikir babagan apa sing bisa kita sinau saka EEG…
Waca liyaneOra didiagnosis
Diskusi DEE-P iki direkam ing 13 September 2023. Sajrone Diskusi DEE-P iki, kita njelajah pengalaman duwe anak sing kelainan epilepsi langka sing ora didiagnosis. Kita diskusi macem-macem…
Waca liyaneRAKAMAN - Langkah-langkah Kasil Maju kanggo Populasi sing Dipengaruhi Parah
Mbangun Konsorsium kanggo Maju Langkah-langkah Hasil kanggo Populasi sing Terdampak Parah Iki minangka rekaman saka lokakarya kaping pindho, sing dianakake tanggal 11 November 2021, fokus ing Mbangun Konsorsium kanggo Maju…
Waca liyaneRECORDING - NILAI STATUS LAN KESEMPATAN
NILAI STATUS LAN KESEMPATAN UNTUK MENGEMBANGKAN LANGKAH-LANGKAH HASIL KANGGO PENDUDUK YANG PALING KENA KANGSA Iki minangka rekaman ing dina siji saka lokakarya, sing dianakake tanggal 4 November 2021, lan…
Waca liyaneApa sing bisa ditindakake kanggo ngobati epilepsi?
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
Waca liyaneHow Effective is Your Epilepsy Care?
We all want our kids to get the best care possible. But how effective has your child’s epilepsy care been? What can we do to improve outcomes? This conversation—with three…
Waca liyaneABC saka Uji Coba Klinis Part 2 - Apa Saben Kulawarga Penyakit Langka Kudu Ngerti
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
Waca liyaneUji Coba Klinis ABC Part 1 – Dasar
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
Waca liyane