Acara
Webinar: Napa Sumbangan Jaringan Otak Penting
Kelangan wong sing ditresnani kanthi epilepsi langka ora bisa dibayangake. Kita kabeh pengin luwih akeh sing bisa kita lakoni kanggo mungkasi kasangsaran sing ana ing…
Perencanaan Tindakan Penyitaan Musim Panas - Apa sampeyan kudu ngerti lan nindakake supaya disiapake
"Summer Seizure Action Planning - What you need to know and do to be prepared" with pediatric neurologist, Dr. Inna Hughes With Summer comes changes in routine, new caregivers, and…
Planificación SAP de verano: lo que necesita saber y hacer for estar preparado
"Planificación SAP de verano: lo que necesita saber y hacer para estar preparado" con Dr. Rebecca Garcia-Sosa En Español! Con el verano llegan cambios en la rutina, nuevos cuidadores y…
Apa sing kita sinau babagan vaksin lan infeksi COVID-19 ing wong sing nandhang epilepsi langka?
Apa sampeyan kepengin weruh keamanan vaksin COVID-19 kanggo bocah-bocah ing umur 5 taun sing duwe epilepsi langka? Apa sampeyan ora yakin manawa anak sampeyan bakal divaksinasi epilepsi langka ...
Bali menyang Sekolah SAP
Back to school time means it's time to update your child's seizure action plan (SAP)! Make sure that those who care for your child know how to handle seizure emergencies…
Kesehatan Lisan lan Kebersihan Kanggo Sing Ora Mangan Mbukak
Does your loved one with a DEE/rare epilepsy struggle with dental issues? Swollen gumsExcessive oral secretionsTooth grinding Join us to hear from Dental Hygienist who specializes in working with medically…
Keto lan DEEs
Do you have questions about the keto diet? Come to find out how the ketogenic diet works with the DEEs from Ketogenic Diet Program Director and Pediatric Epileptologist Dr. Chalongchai…
Bedah Epilepsi lan Kelainan Genetik Langka
Come hear about when and why you should consider epilepsy surgery for your child with a DEE. Our guests will be: Dr. Ahmad Marashly, Medical Director, Pediatric Epilepsy Surgery Program,…
Masalah GI Pediatrik ing DEEs
Come hear about GI issues such as reflux, feeding tubes, constipation, and more from pediatric GI doctor and KdVS dad Russ Zwiener. The discussion will be led by Kaci Fisher, a…
Webinar Update Komunitas Inchstone
The tools that are currently being used to measure the progress of people with developmental and epileptic encephalopathies (DEEs) are not able to capture their small improvements, which could jeopardize…
Update Advokasi Jaringan Tindakan Epilepsi
Last Fall 2022, a new consortium - Epilepsies Action Network (EAN) - launched to develop national government relations strategies to increase federal funding for research, translation, care, and cures for…
Sinau Cara Ngoptimalake Data Kanthi CRID
Join us for this 30 min webinar to learn more about the Clinical Research ID (aka The CRID™), a service that enables patients and parents (and their child/children) involved in…
