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Menguruskan Perjalanan bersama Anak Kompleks anda
Dalam perbualan ini, anda akan bertemu Blyth Lord – ibu kepada Cameron yang mengalami gangguan genetik dan meninggal dunia pada usia 2 tahun. Dia adalah Pengasas…
Baca LagiPenjagaan Jarang & Cabaran dengan Penjagaan Diri – Perbincangan DEE-P
Webinar ini telah dirakamkan pada 30 Jun 2023. Sertai kami untuk perbincangan ini dengan penjaga jarang tentang cabaran penjagaan diri. Orang ramai suka memberitahu kami bahawa kami perlu…
Baca LagiIsu GI dan Gangguan Neurodevelopmental
This webinar was recorded on February 13th, 2023. In this webinar, hear about GI issues such as reflux, feeding tubes, constipation, and more! Speakers: Russ Zwiener, pediatric GI doctor and KdVS…
Baca LagiPembedahan Epilepsi dan Epilepsi Genetik Jarang
Are you curious about when and why you should consider epilepsy surgery for your child with a rare genetic epilepsy or DEE? Our guests are: Dr. Ahmad Marashly, Medical Director,…
Baca LagiDiet Ketogenik dan DEE
DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on October 17, 2022. Find out how the ketogenic diet works with the DEEs from Ketogenic Diet Program Director and…
Baca LagiTerapi Pelemahan Pertumbuhan – Semua yang Anda Mahu dan Perlu Tahu
This is the recording of the DEE-P webinar which was recorded on May 18, 2022 In this incredible webinar, you will learn about growth attenuation from the caregiver, clinical, ethical,…
Baca LagiMembongkar Misteri Ataxia, Hipertonisitas, Athetosis dan Nada Campuran
“Unraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone” is the second in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
Baca LagiGambaran Keseluruhan Hipotonia dan Bagaimana Ia Mempengaruhi Fungsi dan Perkembangan Keseluruhan
“An Overview of Hypotonia and How it Impacts overall Functioning and Development” is the first in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with…
Baca LagiSindrom Epilepsi Jarang: ESES, CSWS, EECWS?
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
Baca LagiPerangsang Saraf- Bolehkah VNS, DBS, atau RNS Membantu?
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
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