Publicacións coa etiqueta 'Top Viewed'
Xestionar a viaxe co seu fillo complexo
Nesta conversación, coñecerá a Blyth Lord, a nai de Cameron que tiña unha enfermidade xenética e faleceu aos 2 anos. É a fundadora de...
Le máisCoidados raros e desafíos co coidado persoal: unha discusión DEE-P
Este seminario web gravouse o 30 de xuño de 2023. Únete a nós para esta discusión con coidadores raros sobre os retos do coidado persoal. A xente gústalle dicirnos que necesitamos...
Le máisProblemas gastrointestinais e trastornos do neurodesenvolvemento
This webinar was recorded on February 13th, 2023. In this webinar, hear about GI issues such as reflux, feeding tubes, constipation, and more! Speakers: Russ Zwiener, pediatric GI doctor and KdVS…
Le máisCirurxía da epilepsia e epilepsias xenéticas raras
Are you curious about when and why you should consider epilepsy surgery for your child with a rare genetic epilepsy or DEE? Our guests are: Dr. Ahmad Marashly, Medical Director,…
Le máisDieta Cetoxénica e os DEE
DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on October 17, 2022. Find out how the ketogenic diet works with the DEEs from Ketogenic Diet Program Director and…
Le máisTerapia de atenuación do crecemento: todo o que queres e necesitas saber
This is the recording of the DEE-P webinar which was recorded on May 18, 2022 In this incredible webinar, you will learn about growth attenuation from the caregiver, clinical, ethical,…
Le máisDesvelando os misterios da ataxia, a hipertonicidade, a atetose e o ton mixto
“Unraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone” is the second in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
Le máisAn Overview of Hypotonia and How it Impacts Overall Functioning and Development
“An Overview of Hypotonia and How it Impacts overall Functioning and Development” is the first in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with…
Le máisSíndrome de epilepsia rara: ESES, CSWS, EECSWS?
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
Le máisEstimuladores nerviosos: un VNS, DBS ou RNS podería axudar?
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
Le máis