Posts Tagged ‘Top Viewed’
管理複雜孩子的旅程
在這次對話中，您將遇到 Blyth Lord——卡梅倫的母親，她患有遺傳性疾病並在 2 歲時去世。
閱讀更多罕見的護理和自我護理的挑戰 – DEE-P 討論
本次網路研討會錄製於 2023 年 6 月 30 日。人們喜歡告訴我們我們需要…
閱讀更多胃腸道問題和神經發育障礙
This webinar was recorded on February 13th, 2023. In this webinar, hear about GI issues such as reflux, feeding tubes, constipation, and more! Speakers: Russ Zwiener, pediatric GI doctor and KdVS…
閱讀更多癲癇手術與罕見遺傳性癲癇
Are you curious about when and why you should consider epilepsy surgery for your child with a rare genetic epilepsy or DEE? Our guests are: Dr. Ahmad Marashly, Medical Director,…
閱讀更多生酮飲食和 DEE
DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on October 17, 2022. Find out how the ketogenic diet works with the DEEs from Ketogenic Diet Program Director and…
閱讀更多生長抑制療法—您想要和需要知道的一切
This is the recording of the DEE-P webinar which was recorded on May 18, 2022 In this incredible webinar, you will learn about growth attenuation from the caregiver, clinical, ethical,…
閱讀更多揭開共濟失調、肌張力過高、手足徐動症和混合音的奧秘
“Unraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone” is the second in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
閱讀更多肌張力減退及其如何影響整體功能和發育的概述
“An Overview of Hypotonia and How it Impacts overall Functioning and Development” is the first in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with…
閱讀更多罕見癲癇症候群：ESES、CSWS、EECSWS？
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
閱讀更多神經刺激器 - VNS、DBS 或 RNS 有幫助嗎？
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
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