Posts Tagged ‘Top Viewed’
Managing the Journey with your Complex Child
In this conversation, you will meet Blyth Lord – mom to Cameron who had a genetic disorder and passed away at the age of 2. She is the Founder of…
Read MoreRare Caregiving & Challenges with Self-Care – A DEE-P Discussion
This webinar was recorded on June 30th, 2023. Join us for this discussion with rare caregivers about the challenges of self-care. People are fond of telling us we need to…
Read MoreGI Issues and Neurodevelopmental Disorders
This webinar was recorded on February 13th, 2023. In this webinar, hear about GI issues such as reflux, feeding tubes, constipation, and more! Speakers: Russ Zwiener, pediatric GI doctor and KdVS…
Read MoreEpilepsy Surgery and Rare Genetic Epilepsies
Are you curious about when and why you should consider epilepsy surgery for your child with a rare genetic epilepsy or DEE? Our guests are: Dr. Ahmad Marashly, Medical Director,…
Read MoreKetogenic Diet and the DEEs
DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on October 17, 2022. Find out how the ketogenic diet works with the DEEs from Ketogenic Diet Program Director and…
Read MoreGrowth Attenuation Therapy – Everything You Want and Need to Know
This is the recording of the DEE-P webinar which was recorded on May 18, 2022 In this incredible webinar, you will learn about growth attenuation from the caregiver, clinical, ethical,…
Read MoreUnraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone
“Unraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone” is the second in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
Read MoreAn Overview of Hypotonia and How it Impacts Overall Functioning and Development
“An Overview of Hypotonia and How it Impacts overall Functioning and Development” is the first in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with…
Read MoreRare Epilepsy Syndrome: ESES, CSWS, EECSWS?
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
Read MoreNerve Stimulators- Could a VNS, DBS, or RNS Help?
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
Read More