Posts Tagged ‘Top Viewed’
管理複雜孩子的旅程
在這次對話中，您將遇到 Blyth Lord——卡梅倫的母親，她患有遺傳性疾病並在 2 歲時去世。
閱讀更多罕見的護理和自我護理的挑戰 – DEE-P 討論
本次網路研討會錄製於 2023 年 6 月 30 日。人們喜歡告訴我們我們需要…
閱讀更多胃腸道問題和神經發育障礙
本次網路研討會錄製於 2023 年 2 月 13 日。講者：Russ Zwiener，兒科胃腸病醫生和 KdVS…
閱讀更多癲癇手術與罕見遺傳性癲癇
您是否想知道何時以及為何應考慮為患有罕見遺傳性癲癇或 DEE 的孩子進行癲癇手術？我們的來賓是：艾哈邁德‧馬拉什利博士，醫療主任…
閱讀更多生酮飲食和 DEE
DEE-P 於 2022 年 10 月 17 日與 KCNT1 癲癇基金會合作舉辦了此次活動。
閱讀更多生長抑制療法—您想要和需要知道的一切
This is the recording of the DEE-P webinar which was recorded on May 18, 2022 In this incredible webinar, you will learn about growth attenuation from the caregiver, clinical, ethical,…
閱讀更多揭開共濟失調、肌張力過高、手足徐動症和混合音的奧秘
“Unraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone” is the second in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
閱讀更多肌張力減退及其如何影響整體功能和發育的概述
“An Overview of Hypotonia and How it Impacts overall Functioning and Development” is the first in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with…
閱讀更多罕見癲癇症候群：ESES、CSWS、EECSWS？
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
閱讀更多神經刺激器 - VNS、DBS 或 RNS 有幫助嗎？
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
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