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Ngatur Perjalanan karo Anak Komplek
Ing obrolan iki, sampeyan bakal ketemu Blyth Lord - ibu kanggo Cameron sing duwe kelainan genetis lan tilar donya nalika umur 2. Dheweke dadi Pendiri ...
Waca liyanePerawatan Langka & Tantangan karo Self-Care - Diskusi DEE-P
Webinar iki direkam tanggal 30 Juni 2023. Gabung karo diskusi iki karo pengasuh langka babagan tantangan perawatan diri. Wong seneng ngandhani yen kita kudu…
Waca liyaneMasalah GI lan Gangguan Neurodevelopmental
Webinar iki direkam tanggal 13 Februari 2023. Ing webinar iki, krungu bab masalah GI kayata refluks, tabung pakan, constipation, lan liya-liyane! Pembicara: Russ Zwiener, dokter GI pediatrik lan KdVS…
Waca liyaneBedah Epilepsi lan Epilepsi Genetik Langka
Apa sampeyan kepengin weruh kapan lan kenapa sampeyan kudu nimbang operasi epilepsi kanggo bocah sing duwe epilepsi genetik langka utawa DEE? Tamu kita yaiku: Dr. Ahmad Marashly, Direktur Medis,…
Waca liyaneDiet Ketogenik lan DEEs
DEE-P dadi tuan rumah iki kanthi kemitraan karo Yayasan Epilepsi KCNT1 tanggal 17 Oktober 2022. Temokake kepiye cara diet ketogenik karo DEE saka Direktur Program Diet Ketogenik lan…
Waca liyaneTerapi Atenuasi Pertumbuhan - Kabeh Sampeyan Kepengin lan Perlu Dingerteni
This is the recording of the DEE-P webinar which was recorded on May 18, 2022 In this incredible webinar, you will learn about growth attenuation from the caregiver, clinical, ethical,…
Waca liyaneMbukak Misteri Ataxia, Hipertonisitas, Athetosis lan Nada Campuran
“Unraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone” is the second in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
Waca liyaneAn Overview of Hypotonia and How it Impacts Overall Functioning and Development
“An Overview of Hypotonia and How it Impacts overall Functioning and Development” is the first in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with…
Waca liyaneRare Epilepsy Syndrome: ESES, CSWS, EECSWS?
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
Waca liyaneNerve Stimulators- Could a VNS, DBS, or RNS Help?
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
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